Monday, 13 January 2014

Steroid & anaesthetic injections in hips

I had steroid and anaesthetic injections in both hips just before Christmas to try and reduce the burning nerve pain I have down the outside of my legs, and to make it clearer whether the pain I have is coming from my hips or back (or both, and to make it clear what is coming from where.)

Before the procedure I was given very little information, and nothing I could find online was particularly clear or detailed. My main anxiety was down to this lack of information. I knew it was a common procedure with low complication rates, and that if it didn't help, it was unlikely to make things worse.

A friend's sister is having the same jab, but in a different place, and wanted a bit of info, so I sent the following as an email. It seemed sensible to put that here so maybe it will be useful for someone else, too.

The procedure was amazingly low discomfort - so much that I'd not worry about getting my back done, and am thinking of asking about that.

I went in early in the morning, it's counted as day surgery, but it's not done with any sedation or anything, just local anaesthetic where the injection will be done. I was allowed to eat & drink as normal beforehand.

I walked into the theatre & hopped on the table, they swabbed my hips with iodine stuff and stuck sterile drapes over my midriff, with just two holes where they needed to get to the skin. They did the anaesthetic injection which was a little stingy using a thin & not very long needle. They did a couple of jabs of anaesthetic each side, using the same syringe & needle for each. 

A portable x-ray machine had been wheeled in shortly after I lay on the table. They
 took a first image, and they popped the first big injection in - it was a spinal needle, so 4-5cm long or so, with a cannula around it. They took another image to check it was in the right place, then took the needle out leaving the cannula in place. Then they attached a syringe to the cannula and popped the steroid / anaesthetic mix in, checking after it was all in with another x ray.

These were lowish dose x-rays, so several in the same day isn't a problem,

At one point there was a dull pressure ache down my thigh, as the steroid went in, but the whole thing was far less painful than anything my body does to me.  Each side took about 5 minutes maximum. 

When they had finished, the peeling off of the sterile drape was the most painful part, as the adhesive part of the drape gave me a free waxing >_<

After this, I was wheeled up to recovery, then to the obs ward to have a cup of tea & biscuit, and show the nurse I could walk - which I could.

I had no increased pain at all, it was like the burning in my legs was switched off. This is a good response, and some increased pain for a couple of days can be experienced. As the local wore off, before the steroid kicked in my hips were a little grumpy, but less than they had been.

 I went to the shop I do odd shifts at for my shift straight from the hospital, sitting on  hard chair thee for about 4 hours with no more than my regular pain.

 Pain wise, it's been 2 months now and my thighs sometimes have a bit of soreness, my hips ache a bit, but it's dialled right down, and has let me get a lot more exercise. I feel like it might be starting to wear off, annoyingly, but I need to see how it goes. I've not needed my crutches since the jabs, and have been able to reduce my tramadol intake by 1/3.

Overall, it's a very straight forward procedure, and although unpleasant, is IME less unpleasant than dental work and a lot less sore than the pain of trapped nerves.

Sunday, 4 August 2013

DWP Consultation on PIP assessment - Moving Around activity

This is my response to the DWP's consultation on the Moving Around activity - specifically with regard to their plan to not automatically award Enhanced Rate to people who can only walk from 21 - 50m, with or without mobility aids.

It's not amazing, but I want it to be in public so the DWP can't try and claim no one was clearly against the distance reduction. 



Someone who can only walk 21-50 metres with a mobility aid does not have enough mobility to not need considerable support to live a full and independent life. The very use of a mobility aid often makes doing some things harder. I walk with crutches – automatically this means I can’t carry more than a very small amount of shopping, for example. Whilst they mean I can walk further than I could unaided, they also create an access barrier. On balance I find them worth that inconvenience, but that barrier is still very real, with real consequences.

Given access to schemes such as Motability are based on receiving higher rate DLA, and then Enhanced Rate PIP, people who have a small amount of mobility will be severely impeded by losing access to those schemes.

The DWP itself has estimated some 90,000 people will lose their Motability eligibility – which includes the hire of powerchairs, so that really is causing people to lose their means of mobility.

Many people can’t drive precisely because of their impairment. If public transport is inaccessible to people because of distance to stops / stations, or not being able to get on trains or tubes, or buses causing pain or nausea or sensory overload, the only alternative is to take taxis. Taxis are expensive, so without access to adequate benefit payment – which Enhanced PIP would provide – taxi journeys would be out of of reach for people on Standard Rate.

If people need to use taxis to get around £20 won’t pay for more than 2 or 3 cab journeys, if you’re lucky. Which will see people who need to travel having to decide between which to travel to - GP, hospital appointments, adult education, the Jobcentre, voluntary work, - heaven forefend disabled people should want a social life and to see friends or family!

21-50 metres is not far enough to get to many bus stops, or from one’s front door to a local corner shop, or between benches on a high street.

To get to work many people – including disabled people – need to get from public transport to their place of work. For how many people is this less than 50m? I suspect not many. For me, it’s a 180m walk. Taxis can’t get to all workplaces so Access to Work isn’t necessarily going to be able to meet people’s transport assistance needs.

Supermarkets are bigger than a 21-50m walk to get around. Bus stops near supermarkets tend to be more than 20m away from the front door. The assumption that everyone has access to a car to get them to a supermarket is deeply flawed.

Many disabled people need to have shopping delivered. The cumulative delivery costs of shopping online for the bulk of one’s needs shouldn’t be a burden on disabled people. The point of benefits like DLA / PIP is to mitigate these extra costs. If it is only a small sum, there’s no way it’ll stretch to meet all of these extra costs. Someone with mobility as restricted as only being able to walk up to 50m is likely to also have trouble standing for extended periods – problems queuing are difficult to mitigate. Problems carrying shopping means often having to rely on other people to carry things for you – which if someone lacks support of people who can do this, means needing to pay people to do this.

Being unable to walk less than 50m even with an aid, should qualify someone automatically for Enhanced Rate PIP.

I will go further. Being unable to manage 100m should continue to be the distance at which it is considered someone’s mobility is considerably impaired. That is far enough to hobble to a corner shop & back, over to a post box & back, or from a bus stop to a shopping centre’s wheelchair hire office. Being effectively tied to one’s house by a piece of string 50m long (because you have to get there AND BACK) is incredibly restrictive. If that piece of string is cut down to 10m, that’s only to the garden gate. That is cruel, and is going to further restrict disabled people who are already living lives restricted by pain, fatigue and immobility.

There is a choice now with PIP. Choose to enable people living with impairments, or to further disable those people. A government that actively creates policies that worsen the lives of disabled people is inhumane and cruel.

I also want to add when I responded to the PIP criteria before, 20 metres distance was nowhere to be seen – this late addition consultation should never have been needed. Again, this adds a burden to disabled people, requiring us to repeatedly consult.

Thursday, 18 July 2013

New Bus for London - an emblem of Boris Johnson's contempt for disabled people?

The New Bus for London / New Routemaster has been chugging around selected London routes, boiling its top-deck passengers and irritating me every time I see one.

I loved the old Routemasters, but I also appreciated that they'd done their job and needed to be retired. They weren't comfortable to travel on, and if you had luggage / shopping / a buggy / were a wheelchair users / had impaired mobility / long legs... etc etc they were either less than ideal or totally inaccessible.

As a bus designed from scratch, the New Bus for London could have been designed with all of London's passengers in mind. Instead it seems to be a step backwards in accessibility terms. Design choices have been made that are active barriers for some disabled people.

The wheelchair user's space has been designed with, seemingly, only smaller manual wheelchair users in mind. Handrails have been put in awkward spaces, and it's just not big enough for larger powerchair users.

The destination blinds are in white-on-black, which goes against TfL's own standards for legibility.  When I asked about this choice, I got the following response:

"Black and white blinds were chosen when designing the New Bus for London as these are in keeping with the traditions of the original iconic Routemaster bus, which partly inspired the design of the bus and its front and rear profile. They provide information in a format that is clear and legible for passengers, particularly at night when it is back lit.

As it meets legibility standards for contrast and visibility, no consultation was required" (my highlighting)

Most guidance I can find on legibility says yellow text on black provides best contrast for visually impaired readers, and the response from TfL contradicts the earlier information on TfL's legibility standards.

To me, this seems like a backsliding of access provision - a choice of style over readability for a wider group of people, and as such is a discriminatory choice.

This, combined with the decisions around the space for wheelchair users being less than ideal (and again, worse than existing spaces on other buses) makes me feel like the design team for this bus and Boris Johnson as the figurehead of this project, don't care about disabled people being able to travel around London, and are happy to actively place barriers in people's way.



Wednesday, 6 February 2013

How do Tories actually "help the most vulnerable in society"

The Independent Living Fund was a scheme whereby people with high levels of care needs were enabled to live independently, in their own homes rather than in residential care, through personal care being funded from central government.

Local councils have a responsibility to provide care for residents who have care needs, but in reality many councils are rationing this care and only providing it to those in the most desperate need - and then, only providing the minimum required. So someone who isn't incontinent, for example, may be put in nappies overnight rather than fund a personal assistant to assist that person with toileting.

Some councils are also looking at putting people into residential care if it would be cheaper to care for them there rather than in the community. (http://www.worcesterstandard.co.uk/2013/01/01/news-Legal-challenge-over-council%27s-care-cap-59039.html) The ILF has previously been used to top up people's care funding meaning disabled people could continue to live in the community.

Yes, it is councils' responsibility to provide social care, but the Coalition knows councils have shrinking budgets - they're the government providing those bloody shrinking budgets to the councils! All they're doing is going "Not my problem" about everything, and shoving it all onto other people's budgets.

I think the Tories hide behind "localism", and know people will suffer as tasks fall to different regions to legislate, when dealing with some things nationally is realistically the only way to ensure fair access to those things.

There are many people supported by the ILF - one woman is someone I know through work, Sophie Partridge, who has put a video together voicing her concerns.




Further discussions with people affected by closure of ILF: http://falseeconomy.org.uk/blog/people-affected-by-the-closure-of-the-independent-living-fund

The Independent Living Fund really did support some of those the Tories refer to as "the most vulnerable in society", people with incredibly complex care needs, who need 24 hour support. The Tories have closed it, and councils will be expected to pick up the tab, but the money is just not there.

How is this "supporting the most vulnerable"? As far as I can see it's just making those "most vulnerable" not their problem, passing the buck, handing over responsibility, and ultimately not giving a toss as long as their bottom line isn't affected.

Here is a letter from the DWP about the closure of the ILF:

"Thank you for your recent correspondence, raising issues arising from Government policies which are the responsibility of this Department. Government Ministers receive a large volume of correspondence and they are unable to reply personally on every occasion. I have been asked to respond to some of your points.

There are just over 19, 000 ILF users. There are approximately 13,000 users in England, 3,000 in Scotland, 2,000 in Wales and 750 in Northern Ireland. The average weekly ILF payment is £347. The most common use of ILF funding is to pay for personal assistants.

There are approximately 3,000 Group 1 users (joined pre-1993). While many Group 1 users receive some support from their local authority, this input is not part of their ILF eligibility criteria. There are approximately 16,000 Group 2 users (joined in or after 1993). Group 2 users have care packages which include a minimum contribution of £200 per week from their local authority.

94% of ILF users receive support from both the ILF and the local authority. Around 41% of these users receive direct payments from both the ILF and their local authority but under different eligibility and charging functions. Around 1, 200 ILF users do not have a known local authority contribution to their care package.

Having carefully considered all the responses to the consultation, the Government believes that closing the ILF in 2015, with funding devolved to local government in England and the devolved administrations in Scotland and Wales, is the best way forward. The significant changes in the wider system of care and support for disabled people mean that the care and support needs of current ILF users can, and should, be met within a single cohesive system. It is not justifiable to continue to support those disabled people who were ILF users when the fund closed to new applications, in a different way from other disabled people with similar needs. I can reassure ILF users that the Government remains fully committed to maintaining current ILF user’s care packages up to April 2015.

We believe that individual local authorities are best placed to provide locally tailored funding and services integrated around individuals’ needs through direct payments and personal budgets. Local Authorities already have a statutory responsibility to assess and fund the care needs of all disabled people – those who have been ILF users and those who have not. Over 18,000 existing ILF users already receive expert assessment and a contribution to their care funding through their Local Authority and discretionary ILF payments and have never taken precedence over this. However, operating the ILF in addition to the mainstream care and support system has duplicated functions and created unnecessary bureaucracy for both users and local authorities."

I don't find that letter satisfactory. It offers absolutely no assurance that people will continue to get the support they need to continue to live their own lives as we all have the right to.

Sunday, 25 November 2012

Response to Minister for Disabled People's letter of 17th November 2012

This is my response to this letter: http://misplacedmarbles.blogspot.co.uk/2012/11/letter-from-esther-mcvey-dated-17th-nov.html

Dear Ms McVey,

Thank you for your reply to my letter dated 12/10/2012, on support for disabled people.

I'm glad to see you take on board the importance of ensuring disabled people have the right support in place, and in jobs that suit individual requirements. However, some of my points have not been addressed, so I feel the need to write back asking for clarification.

You haven't really addressed the point that there are some disabled people for whom work is not a realistic expectation.

There are those with life-limiting conditions who may not wish to spend their final months on Earth sitting in the Jobcentre chasing menial and minimum-wage work. There are people living with conditions that cause relentless chronic pain and fatigue where going to work would render them unable to do anything else, once back home.

People with profound and multiple impairments who require 24 hour care may wish to enter work with a lot of support, but pressure should not be put on people to enter the very competitive world of the "jobs market" when they can't compete on a level playing field.

Why are people who can't participate in the regular working world expected to live on a pittance, fighting a cruel system for every penny that is begrudgingly given, government who on the whole persist in selling the line that disabled people are scroungers? When MPs themselves commit far more fraud than benefit claimants (some 30% involved in the expenses fraud scandal, compared to 0.5% of benefit claimants.)

Given the closure of the Independent Living Fund which supported those who are so profoundly impaired they require 24 hour care, or would need to live in institutions, how can you even think of saying your government wants to help the most vulnerable? Council budgets are being slashed, social care is only going to those in desperate need, so what is going to replace the ILF?

Access to Work will clearly help those who are in work, with work-related costs. But for support with life outside work. PIP will have a smaller caseload, so there will be more disabled people going totally unsupported with daily living tasks. What are we supposed to do? What will the estimated 100,000 disabled people who lose Motability vehicles supposed to do? How will they remain independent, or if working, remain in work having lost their accessible transport?

I have heard the line "we have consulted extensively with disabled people and disabled people's organisations." before, but I'm having trouble believing it without seeing evidence.

thanks to an FOI request by Disabled People against the Cuts I found the following organisations were met with during PIP consultations, but very few had positive things to say:

1.  Action for ME;
2.  Action for Blind People
3.  Action on Hearing Loss;
4.  CALL Scotland;
5.  Capability Scotland;
6. Citizens Advice
7.  Centre for Mental Health;
8.  Child Poverty Action Group;
9.  Crohn’s and Colitis UK;
10. DIAL Peterborough;
11. Disability Action In Islington;
12. Disability Alliance;
13. Disability Lambeth;
14. Down’s Syndrome Association;
15. Dystonia Society;
16. Ecas;
17. Enfield Disability Association;
18. Essex  Coalition  of Disabled People;
19. Family Action;
20. Glasgow Centre for Inclusive Living;
21. Hackney Carers;
22. Hayfield Support Services with Deaf People;

23. Headway Glasgow;
24. Haemaphilia Society;
25. Inclusion Scotland;
26. Independent Living in Scotland Project;
27. Leonard Cheshire Disability;
28. Limbless  Association;
29. Lothian Centre for Inclusive Living;
30. Macmillan;
31. Margaret  Blackwood  Housing Association;
32. Mencap;
33. Middlesborough Welfare Rights Unit;
34. MS  Society;
35. Mind;
36. Momentum Scotland;
37. National AIDS Trust;
38. National Autistic Society;
39. National Deaf Children’s Society;
40. National  Rheumatoid  Arthritis Society;
41. National  Federation of the Blind;
42. Norfolk Coalition of Disabled People;
43. Parkinson’s UK;
44. Papworth Trust;
45. People First;
46. Poverty Alliance;
47. Quarriers;
48. Royal National Institute of Blind People;
49. Scottish Association for Mental Health;
50. Scope.


Of that list, the following organisations publicly do not approve of your reforms, having real concerns for how disabled people will fare if the reforms go through as planned.

Mencap: "Mencap’s chief executive, Mark Goldring, said: “We are extremely disappointed by the government's rejection of the Lord’s amendments, and failure to listen to the concerns of disabled people and their families."


The RNIB: "This report adds to a growing evidence base that shows the Government cannot follow through on its Big Society agenda and its commitment to give disabled people control and independence by stripping away the very benefits and services that enable them to take part in our communities"
 

Mind: "we are still very worried about the impact the introduction of the new assessment will have on people with mental health problems." "we remain unconvinced that the breadth and detail of activities to be considered is sufficient to properly capture the barriers to participation faced by people with mental health problems"
 

The National Autistic Society: "We are concerned about how the assessment will work for the new benefit, as well as about proposals for regular re-assessments."
 

Scope: "Scope warns that the government is in danger of repeating mistakes with its new benefit assessment.
The charity says that up to two million disabled people risk losing essential financial support because the new £6 billion Personal Independence Payment, introduced to replace Disability Living Allowance (DLA), will use a flawed eligibility assessment." 


Leonard Cheshire: "There have been some positive changes agreed in the Lords, but as the plans stand there are still real fears that many thousands of disabled people will be pushed into poverty and financial hardship if they are found ineligible for support through the new Personal Independence Payment"
 

The National AIDS Trust: "NAT does not consider the proposed functional assessment a more accurate method for identifying disability-related needs than the existing DLA assessment" "NAT is extremely concerned that the reform process is being driven by a pre-determined 20% budget cut" "The decision to focus PIP on those with ‘greatest needs’ is also a move away from the principles of DLA"


Capability Scotland: "These amendments could be the difference between a family being able to heat their home and put food on the table and complete financial devastation.  Unfortunately the UK Government does not have a great track record on listening when it comes to Welfare Reform"



Joint response from Centre for Mental Health, Hafal, Mind, Rethink, The Royal College of Psychiatrists and the Scottish Association for Mental Health: "We do not support the objective of an overall reduction target for the basis of DLA reform – the reform should be based on supporting disabled people to lead fulfilling lives and not primarily concerned with reducing costs."

"We are concerned about the focus on those with ‘greatest need’ – this may be counterproductive and significantly disadvantage those eligible to lower rates of benefit, who may still have high disability costs."


Citizens Advice: "A benefits cap is just one of a number of welfare reforms that will have a disproportionate impact on some of the most vulnerable families, including children, breadwinners who have lost their job, and others forced to give up work because of illness The government is right to try and simplify a benefits system which is far too complex, but unless some safeguards are put in place the combined impact of these sweeping welfare reforms and huge cuts will be catastrophic for a lot of families already stretched to the limit."


In addition, along with the Papworth Trust, these organisations have called for a pause to the Bill because their concerns are so severe:

Papworth Trust
Action on Hearing Loss
Brandon Trust
Campaign for a Fair Society
Disability Rights UK
Disability Wales
Ekklesia
Leonard Cheshire Disability
MS Society
The National Autistic Society
Rethink Mental Illness
RNIB
Sense
Three Cs
United Response
The Westminster Society
 

Breast Cancer Care "Breast Cancer Care, along with other cancer charities, met with Maria Miller MP, Minister for Disabled People and DWP officials in July, to discuss the changes we wanted to make to the Welfare Reform Bill for the benefit of cancer patients. We provided case studies of people with breast cancer to the Minister’s office to demonstrate the possible negative impact of the changes if they go ahead." 

http://www.breastcancercare.org.uk/campaigning-volunteering/campaigning/current-campaigns/welfare-benefits/what-have-we-done-so-far

MS Society "The MS Society, along with other major charities, have today urged the Government to pause the Welfare Reform Bill and carefully consider the future of Disability Living Allowance

http://www.mssociety.org.uk/ms-news/2012/01/major-charities-call-pause-on-welfare-reform-bill


Sense "Sense is deeply concerned the Government’s decision to get rid of the automatic entitlement to DLA mobility component for deafblind people will leave many out in the cold and the needless bureaucracywill create confusion and cost the tax payer more. The Government’s short sighted focus on disabled people with solely higher needs means preventative support will be slashed. This financially irrational approach is not sustainable and will cut many deafblind people off from participating in society"

And as for your press office being open 24/7, maybe you need to tell your fellow MPs to check with them before talking to the media. Your own colleagues are using inaccurate statistics and wrong information - Ian Duncan Smith linking DLA with in-work benefits, when it isn't. Repeated use of the "30% growth in DLA" figure, which is inappropriate as it includes children and older adults - when PIP will only apply to working age people, so relevant growth is only about 14% when demographics are accounted for. Whenever a minister talks about fraud they use the 5 Billion punds figure - but that is fraud AND ERROR - Approx £1 Billion is claimed fraudulently and £4 Billion lost through DWP error! Add to that the £17 Billion UNDERCLAIMED, and the fraud figure pales into near insignificance. However I've not heard Ian Duncan Smith mention the huge amount underclaimed.

I look forward to your respone

Yours sincerely

Robin

Saturday, 24 November 2012

Save Lewisham Hospital's A&E department

Lewisham Hospital's A&E is being threatened with closure. Not because it is failing - almost the reverse. It is doing really well, and has recently been renovated. No, because the Queen Elizabeth Hospital in Woolwich is bankrupt, the administrator wants to close Lewisham to drive more business to the Queen Elizabeth, meaning they get more funding!

Lewisham Hospital serves a borough with a large population - nearly 250,000 people - as well as taking in people from surrounding boroughs if, for whatever reason, they can't go to their local hospitals.

If Lewisham A&E closes, its maternity and ICU services will be reduced as emergency care on site won't be possible.

If Lewisham A&E closes, people will have to travel further on public transport to get to other hospitals - the QE or Kings College Hospital. The QE, for me, is an hour by buses, and then a 10 minute walk. If I'm sick enough to need to go to A&E, I don't want to have to sit on one bus for 20 minutes, wait at a bus stop, sit on another bus for 20 minutes, and then walk 10-20 minutes from the bus stop to the A&E department. Kings is a great hospital, but it already serves a large population, and is already very busy and overstretched.

How many people will end up more impaired by extended waits to get to A&E? Strokes, heart attacks, loss of blood - these things need very rapid treatment. An ambulance taking 15 minutes longer to get someone to hospital reduces survival rates by a huge amount, and those who do survive are likely to have poorer outcomes and live with unnecessary impairment afterward.

You can help. Go here: http://www.savelewishamhospital.com/how-to-respond-to-tsa/ and respond to the consultation as advised - we have only two weeks to do this.

All consultation documents, including Easy Read are here: http://www.tsa.nhs.uk/document-downloads

Minister for Disabled People responds to my letter of October 12th

Letter from Esther McVey, dated 17th Nov 2012 replying to http://misplacedmarbles.blogspot.co.uk/2012/10/dear-esther-mcvey.html

Dear Robin,

Thank you for your e-mail of 12 October regarding support for disabled people.

Thank you for your comments on the difficulty of ensuring the right support is in place for disabled people to work. I agree that it is important to make sure that the right support is in place, ensuring the job is suitable for the individual.

Access to Work is a specialist disability programme delivered by this Department, providing practical advice and support to disabled people and their employers, helping them overcome work-related obstacles, resulting from their disability. Access to Work funds the support that is beyond what an employer should provide, as reasonable adjustments.

To ensure the right support is in place, the Access to Work process includes an assessment of the applicant's needs; carried out in their workplace. I agree that it is also important to ensure that the job is suitable for the individual, to help achieve this, the scope of activity that Access to Work funding can support has recently been expanded to include people taking part in a Work Trial arranged by Jobcentre Plus, and young people gaining Work Experience as part of the Youth Contract.

I should add that throughout the process of Disability Living Allowance reform, we have consulted extensively with disabled people and disabled people's organisations.

This includes formal consultations earlier this year on the second draft of the Personal Independence Payment assessment criteria, and the detailed rules that will underpin the new benefit. We received a total of 2,600 responses to our consultations and are now carefully considering these responses.

While I am not able at this stage to reveal the contents of any discussions or submissions from any of the organisations that responded, I can tell you that the Government intends to publish its responses to the consultations later this year, once our considerations are complete. We will also be publishing organisations' responses to the consultations.

I understand you took the opportunity to share your views with us on our proposals by participating in our consultation activity, and I would like to take this opportunity to thank you for that. As you may be aware, more information about Personal Independence Payment can be found on our website at www.dwp.gov.uk/pip.

Furthermore, disabled people have been telling Governments for some years that media tends to highlight the negative and these types of stories are used to affirm some people's prejudices about disabled people. This is not a new issue.

However this Government fully accepts that whilst laws are in place to ensure equality, we need to work together and do more to challenge and change negative attitudes towards disabled people.

That is why we are currently developing our new "Disability Strategy" - which focuses on the responses of thousands of disabled people who gave their views to our "Fulfilling Potential" consultation over the summer.

One of the key areas of the Strategy looks at is promoting positive attitudes and behaviours towards disabled people and tackling discrimination and harassment wherever they occur. We received over 2,200 comments which related to this theme.

Suggestions include the Government benchmarking attitudes in order to properly understand how to make changes over the long-term; producing and launching a media guide for journalists; and training for frontline Government staff to embed disability issues at the start of the policy-making process.

To help deliver the Strategy, we are carry forward ideas proposed by disabled people themselves and we are now setting up a new Disability Action Alliance.

Convened by Disability Rights UK and supported by the Office for Disability Issues, the alliance will join forces with private sector and public sector organisations to help change attitudes and create "inclusive communities" around the country.

Finally, the Department's press office operates a "24/7" service so there is always someone available to help explain the statistics to journalists and help ensure accurate reporting.

I hope this reply explains the position.

Kind regards

Esther Mcvey MP
Parliamentary Under Secretary of State and Minister for Disabled People.